- Harry Appleton is unable to wake up from the deep slumber he enters each night
- Doctors even tried a reflex technique which should have worked – but it didn’t
- They are completely confused as to what could be responsible for the condition
- His parents are becoming concerned as his ordeal appears to be getting worse
A teenager who suffers from a mystery condition is unable to wake up from his 18 hour sleep each day.
Harry Appleton, from Chesterfield, has been unable to go to school for three months as he spends most of his time in bed.
Left completely ‘lifeless’, no amount of prodding or poking can open the 13-year-old’s eyes during his time asleep.
Doctors are baffled as to what could be causing the condition which has made him a ‘completely different person’.
His parents are becoming increasingly concerned as his terrifying situation only appears to be getting worse.
Harry Appleton, from Chesterfield, has been unable to go to school for three months as he spends most of his time in bed
His mother, Jan, 40, from Chesterfield, said it is awful to watch your son go through this. She added: ‘We even thought he had died when it first started happening.
‘He is just completely lifeless. You can touch him or move him and he just does not wake up.
‘We even had a GP come round and he was shining lights in his eyes, but still he would not wake up. He used a pain reflex technique which should have woke him but still nothing.
‘It is almost like he is in some form of coma. You just don’t know what time he is going to wake up during the day. It is really damaging his life.
Ms Appleton continued: ‘He has gone from a happy active boy who played football every three days to someone who is quiet and removed, a completely different person.
‘He cannot go to school and is unable to hang around with his friends like a normal 13-year-old.
His parents are becoming increasingly concerned as his terrifying situation only appears to be getting worse (pictured with his mother, Jan, 40)
‘I can only thank Xbox Live for allowing him some form of normality with his friends or he would not have any social interaction at all.’
Harry has had periods of sleeping for an extended amount of time over the years but nearly two years ago the condition seemed to be happening more regular.
It use to be certain periods of the year and his parents were able to wake him up, but now they have to helplessly watch him sleep.
Doctors originally said he has chronic fatigue syndrome – feeling of severe tiredness, but the family says they are still baffled by the fact he cannot be woken up.
His parents have tried shaking him and even shouting his name, but Harry continues to sleep until his body wakes up naturally.
The youngster has even been admitted into hospital because they were not able to wake him up.
As soon as he is awake, which can range throughout day, he immediately has to take on food before doing anything else.
The family have even tried changing his sleeping pattern by making him go to sleep earlier but nothing has worked so far.
They are now looking to find after-school tuition for Harry in order for him to keep up with his education.
However, due to the uncertainty surround when he wakes up, they have struggled to find anyone available to help.
According to Ms Appleton, the next step for Harry will see his care transferred from Chesterfield Royal Hospital NHS Foundation Trust to Sheffield Children’s Hospital.
WHAT COULD THE CONDITION BE?
Harry’s condition could be down to Kleine-Levin Syndrome – also known as Sleeping Beauty Syndrome.
The neurological condition starts during adolescence, and sometimes begins after an infection or illness.
It is characterised by periods of excessive sleep of up to 20 hours a day. Episodes can come on very quickly and last between a few days to a few weeks.
During such an episode a sufferer may be irritable, childish, disorientated and want to eat excessive amounts of food.
Patients return to normal between episodes, however they may become depressed as a consequence of the condition.
Around 1,000 people worldwide suffer from the disorder. Two-thirds of sufferers are male.
Doctors said it could be chronic fatigue syndrome, a disorder that affects everyday life and leaves sufferers constantly tired.
Also known as ME, it causes long-term illness and disability. However, many improve over time.